{"id":1140,"date":"2019-10-08T00:00:00","date_gmt":"2019-10-08T00:00:00","guid":{"rendered":"https:\/\/cms.smooth.com.au\/uncategorised\/how-radiothon-helping-childrens-hospital-save-lives-and-support-wellbeing-sick-kids-and-their\/"},"modified":"2019-10-08T00:00:00","modified_gmt":"2019-10-08T00:00:00","slug":"how-radiothon-helping-childrens-hospital-save-lives-and-support-wellbeing-sick-kids-and-their","status":"publish","type":"post","link":"https:\/\/cms.smooth.com.au\/lifestyle\/how-radiothon-helping-childrens-hospital-save-lives-and-support-wellbeing-sick-kids-and-their\/","title":{"rendered":"Help The Children\u2019s Hospital Save Lives And Support The Wellbeing Of Sick Kids"},"content":{"rendered":"<p>The Children\u2019s Hospital at Westmead not only saves lives, but also helps to make lives better &#8211; both of which they have done for three-year-old Leni.&nbsp;<\/p>\n<p>Leni\u2019s parents Lisa and Tim were first made aware that something was wrong during a routine scan when the doctor noticed Leni had an unusual shaped head.<\/p>\n<p>Once Leni was born, it became quickly apparent that she was facing some serious issues &#8211; her head was disfigured, and her breathing was laboured.<\/p>\n<p>While receiving specialist care at The Children\u2019s Hospital at Westmead, Leni was diagnosed with a rare genetic disorder called Crouzon Syndrome; the premature closure of skull bones that can affect the shape of the head and face.&nbsp;<\/p>\n<p>Leni has difficulties with breathing, hearing and speech, which have required surgery and depend on four different departments at the Hospital for treatment.<\/p>\n\n<iframe loading=\"lazy\" width=\"560\" height=\"315\" src=\"https:\/\/www.youtube.com\/embed\/TX-9RQH1X3k\" frameborder=\"0\" allow=\"accelerometer; autoplay; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen><\/iframe>\n<blockquote><p><em>\u201cWe were in shock initially, but we were also relieved to have an answer. So many families don\u2019t have an answer, so we feel lucky that Leni has a diagnosis and we know what we are dealing with,\u201d said her father Tim.&nbsp;<\/em><\/p>\n<\/blockquote>\n<p>Leni is known for her big personality. She loves singing, dancing and is often caught wiggling to The Wiggles soundtrack. Leni\u2019s infectious personality is adored by anyone who meets her, and she is an inspiration for all, including her parents.<\/p>\n<blockquote><p><em>\u201cLeni has taught us so much in the last three years. She\u2019s incredibly brave and shows us how important it is to be kind,\u201d said Lisa.<\/em><\/p>\n<p><em>\u201cYou never know when you\u2019re going to need [the hospital\u2019s] help \u2013 and if you do, you will be so incredibly grateful for the work they do&#8230; It has truly saved and changed her life,\u201d said Tim.<\/em><\/p>\n<\/blockquote>\n<p>To support the Children\u2019s Hospital, Radiothon will be raising money on Friday 18 October, with every donation matched dollar for dollar by generous supporters.&nbsp;<\/p>\n<p>A donation as little as $30 will buy a toy medical kit to help explain procedures to children.<\/p>\n<p>$100 will fund music therapy sessions, and $200 will buy four hours with an occupational therapist who will work with babies who have undergone major surgery.&nbsp;<\/p>\n<p>To help improve the lives of sick children like Leni, make your pledge now, or donate on Friday 18 October at <a href=\"https:\/\/www.radiothon.org.au\/pledge\">radiothon.org.au<\/a>, or by calling 1800 770 122.<\/p>\n<p>&nbsp;<\/p>\r\n\r\n","protected":false},"excerpt":{"rendered":"<p>Radiothon donations open Friday 18 October.&nbsp;<\/p>\n","protected":false},"author":34,"featured_media":1141,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[201],"tags":[],"geo_market":[],"class_list":["post-1140","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-lifestyle"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.3 (Yoast SEO v27.3) - 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